IBD Patient Support Foundation (India)

Our Work So Far

Created the first public repository of expert interviews, patient stories, panel discussions, etc. aimed at enabling patients to manage their disease better, raising awareness and creating reliable information that the patients can depend on.
1. Hosted on Facebook Pages and YouTube
2. Linked with online communities on Facebook, Instagram, and WhatsApp
3. Collaborations with the topmost IBD experts in India, and renowned international patient advocates
4. A combined patient outreach of 1000+ patients across all mediums

Worked together with AIIMS, New Delhi for onboarding of patients onto the IBD NutriCare App – a mobile application launched by ICMR and AIIMS for diet tracking and management of IBD patients.

Worked with Colitis and Crohn’s Foundation (India) – an academic body of IBD experts in India, to train educated patients as Patient Counselors under the IBD-CARE program in 2021. This was the first time, patients received formal training to support other patients in their IBD journey.

Represented the IBD Community of India at the 2022 Asia-Pacific IBD Conference, conducted by the Colitis and Crohn’s Foundation (India) and the Asian Pacific Association of Gastroenterology
1. 1st such instance of Indian patients being involved in an Asia-Pacific IBD.
2. Delivered a 30 min talk on “Mitigating the Silent Shrieks of the IBD Patient.”

Collaboration with Enable India to provide free of cost counseling to IBD patients in India – a first of its kind resource for IBD patients in India to access free mental health care.

Enabled the production of an academic thesis dedicated to studying the lives of women living with IBD in India – research work conducted by Tanisha Singh (MA Psychology)

Collaboration with Generation Patient and CCYAN to represent Indian Patient Diaspora and share lived experiences as part of AIG IBD Summit 2023 pre-conference event - IBD CrossTalk.