About Us

Apr 2020 - Dec 2021

• Created the first public repository of expert interviews, patient stories, panel discussions, etc. aimed at enabling patients to manage their disease better, raising awareness and creating reliable information that the patients can depend on.
  1. Hosted on Facebook Pages and YouTube
  2. Linked with online communities on Facebook, Instagram, and WhatsApp
  3. Collaborations with the topmost IBD experts in India, and renowned international patient advocates

• Worked together with AIIMS, New Delhi for onboarding of patients onto the IBD NutriCare App – a mobile application launched by ICMR and AIIMS for diet tracking and management of IBD patients.

• Worked with Colitis and Crohn’s Foundation (India) – an academic body of IBD experts in India, to train educated patients as Patient Counselors under the IBD-CARE program in 2021. This was the first time, patients received formal training to support other patients in their IBD journey.

Jan 2022 - Dec 2023

• Represented the IBD Community of India at the 2022 Asia-Pacific IBD Conference, conducted by the Colitis and Crohn’s Foundation (India) and the Asian Pacific Association of Gastroenterology
  1. 1st such instance of Indian patients being involved in an Asia-Pacific IBD Conference.
  2. Delivered a 30 min talk on “Mitigating the Silent Shrieks of the IBD Patient.”

• Collaboration with Enable India to provide free of cost counseling to IBD patients in India – a first of its kind resource for IBD patients in India to access free mental health care.

• Enabled the production of an academic thesis dedicated to studying the lives of women living with IBD in India – research work conducted by Tanisha Singh (MA Psychology)

• Collaboration with Generation Patient and CCYAN to represent Indian Patient Diaspora and share lived experiences as part of AIG IBD Summit 2023 pre-conference event - IBD CrossTalk.

Jan 2024 - Present

• Extended free counseling service to caregivers of persons living with IBD in India.

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• International Journal Publication on Men's Health with international partners - https://www.sciencedirect.com/science/article/pii/S2949923224000035

• International  Journal Publication on Medical Trauma with international partners - https://www.sciencedirect.com/science/article/pii/S2949923224000047

• Collaboration with Multifly Lifestyle to create locally manufactured support clothing for ostomates in India.

• Donated laptops to support the education and growth of two young girls with IBD whose education has been impacted by severe disease and economic issues.

• Collaboration with QPR Institute India to provide free-of-cost certified Suicide Intervention training to members of the community.

National Partners and Collaborators - 

• Colitis and Crohn's Foundation (India)
• All India Institute of Medical Sciences (New Delhi)
• Enable India
• Multifly Lifestyle
• QPR Institute India

International Partners and Collaborators - 

• School of Pharmacy at the University of Maryland
• Patient Centered Outcomes Research Institute
• Elevate Advocacy
• ICONplc
• Center for Information and Study on Clinical Research Participation
• Connecting to Cure Crohn's and Colitis
• Generation Patient 
• Crohn’s and Colitis Young Adults Network